FND Stories

Untold Stories

There’s a moment every FND warrior remembers - that moment when the doctor says “Functional Neurological Disorder”, and time seems to stand still.

FND Stories

Today, we want to hear your story !

Our FND Stories video campaign weaves individual experiences into a tapestry of connection, strength, and community. Share your perspective on what you wish you had known when first diagnosed with Functional Neurological Disorder (FND). #WhatIWishIKnew

While each journey is unique, they all reveal extraordinary courage and hope. Today, we invite you to share your wisdom with others navigating the FND path! #KnowledgeIsPower

Why Share? Your words could bring comfort, clarity, and strength to someone facing the same challenges.

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Because No One Should Have To Walk This Journey Alone!

Follow the steps below to submit your FND Story video #WhatIWishIKnew

Record a 1 - 2 minutes long video

Introduce yourself briefly (name optional)

Start by asking the question: 'FND, What Now?',

and proceed with briefly describing your

experience

Then state: '#WhatIWishIKnew', and proceed with what you wanted to know about FND that would've helped you early on in your healing journey

Download Consent Form

Conclude your video by saying: 'I pass this wisdom on to you!' Upload your video and complete the consent form

We're proud to celebrate FND Day on Wednesday, 7 May 2025

We’ve partnered with Groote Schuur Hospital and the Cape Town Central Library to host two special awareness events! Together, we’re shining a light on FND - its impact, its challenges, and the strength of those living with it.

Join us as we raise awareness,

spark conversation,

and support change.

#WhatIWishIKnew #KnowledgeIsPower

Where

E-floor Groote Schuur Hospital

When

7 May, 2025

10am - 12pm

Cape Town Central Library

7 May, 2025

2:30 - 3:30pm

By sharing our experiences, we create a chain of human connection, offering hope and insight to those on this journey. Let's amplify our voices, foster understanding, and ensure that FND is recognised across healthcare systems.

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With heartfelt thanks to our sponsors and collaborators - This project would not be possible without the generous support and belief of these incredible organisations. Their contributions have helped bring awareness to Functional Neurological Disorder (FND) and amplify the voices of those living with it.

We are deeply grateful for their partnership in this journey.